https://shearer.org/tags/data-ethics/Recent content in Data-Ethics on Dan ShearerHugo -- 0.160.1en-gbSun, 19 Apr 2026 09:53:25 +0100https://shearer.org/research/medical-observer-systems-review/Fri, 17 Apr 2026 00:00:00 +0000https://shearer.org/research/medical-observer-systems-review/<div class="article-intro"> <p>I looked for every health data system that shares features with my <a href="https://shearer.org/research/medical-snapshot">Medical Snapshot proposal</a>, programmes that test people over time, store what they find, and don&rsquo;t necessarily tell anyone what they found. I found 26, spanning nine decades from the Tuskegee Syphilis Study (1932) to Our Future Health (2022). This page describes what was compared, how the comparison was done, and what the results look like.</p> </div> <h2 id="what-i-measured-and-why">What I Measured and Why</h2> <p>This analysis is compares existing systems against a hypothetical system. There are many reasons why this is not solid science, but it is an interesting preliminary exploration of solutions. There is a olot of sope for future work.</p>